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Health Link Special Edition #303
Childhood Cancer Airs: Tuesday June 20, 2006 7:30-9pm Repeats: Sunday June 25, 2006 5:30-7pm There is nothing that can prepare you for the words, "your child has cancer." Approximately 12,500 children and adolescents are diagnosed with cancer in the United States each year. When it strikes, cancer places an enormous burden on families… physically, emotionally and financially. Join Benita Zahn for a special 90 minute call-in edition of Health Link as we meet some families who have taken on the fight. We will examine childhood cancer from diagnosis and treatment to family support. Guests: Joanna Bull, M.A., M.F.C.C. Joanna Bull is the founder of Gilda's Club and sits on the Board of Directors of Gilda's Club Worldwide. Gilda's Club is named for Gilda Radner, with whom Ms. Bull worked as a cancer psychotherapist during the comedian's illness. Throughout her career, Ms. Bull has worked to establish free cancer support communities - first at the pioneering Center for the Healing Arts in Los Angeles, and later at The Wellness Community in Santa Monica and Redondo Beach, California. In addition to participating in the development and administration of such communities, she has trained and supervised therapists extensively in the concept, and has worked with hundreds of people with cancer and their family members on psychosocial issues related to cancer. Raised in Detroit, Ms. Bull attended the University of Chicago; she also studied at the Chicago Art Institute. Her Masters in Clinical Psychology was earned at Immaculate Heart College in Los Angeles. She is the author of Gilda's Club: Philosophy and Program, as well as numerous professional papers. She is a frequent lecturer at cancer-related institutes and psycho-oncology meetings and conferences around the world, and has been an advisor to the National Cancer Legislation Advisory Committee. Karen Carpenter-Palumbo Karen is regional vice president for the Capital Region at the American Cancer Society. As regional vice president, Karen is in charge of implementing cancer-prevention and patient and family service programs and spearheading development activities in the society's 13-county coverage area. Karen was formerly executive vice president of government programs at Albany-based CDPHP. There, she was responsible for management and fiscal oversight of the Medicare, Medicaid, Child Health Plus, Family Health Plus and regulatory compliance departments. She served as corporate compliance and privacy officer, and as chief lobbyist representing the nonprofit HMO to all levels of government. Earlier, she held positions with Capital District Physicians' Health Plan, the state Office of Mental Health in Poughkeepsie, and worked for the Governor's Office under former Gov. Mario Cuomo. She earned degrees in social work from Rochester Institute of Technology and Long Island's Adelphi University. Karen is a community volunteer and has served on several boards including: the Cystic Fibrosis Foundation of Northeastern New York; the Make-a-Wish Foundation of Northeast New York; Parsons Child and Family Center; Girls Inc. and the State University of New York's Center Women in Government; and a commissioner for the New York state Americorps program. Joyce Crawford, RN, CHPN Joyce is a registered nurse and Certified Hospice Palliative Nurse. She serves as nurse/case manager for The Community Hospice. Joyce handles all of the pediatric cases that come through The Community Hospice's Saratoga offices. She has been with Hospice for 14 years. Jennifer Pearce, MD Dr. Pearce is a pediatric oncologist at the Children's Hospital at Albany Med and an associate professor of pediatrics at Albany Medical College. Richard Sills, MD Dr. Sills is a Professor of Pediatrics at Albany Medical College and Director of Pediatric Hematology and Oncology, Department of Pediatrics, Albany Medical Center. Max Yurenda CEO & Executive Director, Double H Hole in the Woods Ranch a special place where children with life threatening or chronic illnesses can go, have fun and forget their problems. Over 1,440 children and families participate annually in the year round programming. Alex Baron Alex Baron was diagnosed with testicular cancer in November of 2000, he was just 15 years old. His tumor was discovered completely by accident. While playing in a soccer game he was hit in the groin with a ball, which caused a hematoma. This blood clot later caused an infection which brought him to the emergency room. But blood tests revealed more than that. Days later, doctors removed a testicular tumor and said he wouldn't require further treatment. Within a couple months, Baron, who grew up in Rockland County, began collecting pledges for his hometown Relay for Life. Alex just finished his junior year at the University at Albany where he is majoring in history with a political science minor. For the last two years, Baron has organized UAlbany's Relay for Life, an overnight walking or running relay. In March, 800 UAlbany students, staff members, friends and family packed the RAC Arena, and collected about $60,000 for the American Cancer Society. Alex is the founder of Students of Albany Against Cancer/Colleges Against Cancer. In July Alex will represent the American Cancer Society in Portsmouth, England as an Ambassador for their first Relay for Life and in September he will represent New York's 17th district in Washington, DC for Celebration on the Hill 2006 - a unique event that will show lawmakers how the American Cancer Society is waging the fight against cancer in communities nationwide. Web Resources
AMERICAN CANCER SOCIETY
The American Cancer Society is the nation's leading organization for providing patients and their families with cancer-related information. The ACS website provides detailed information on the causes, treatment options, coping tactics, and means of protecting oneself from a wide variety of cancers. They've also established a network through which cancer survivors can link for support. 1-800-227-2345 www.cancer.org THE CAPITAL REGION CANCER SERVICES CONSORTIUM The Capital Region Cancer Services Consortium was created to increase the awareness, availability, and accessibility of programs and services that are available to those touched by cancer. This includes cancer patients, survivors, care givers, family members, friends, and healthcare providers. The Consortium has created a useful resource guide that includes local listings for advocacy, camps, care givers, child care, housing, legal, service providers, support, transportation, uninsured/under-insured, volunteers and web sites. To receive a copy of the Capital Region Cancer Community Resource Guide call (518) 445-2328. THE COMMUNITY HOSPICE The Community Hospice's mission is to serve seriously ill people and their families through the process of dying & grieving and to enhance quality of life with comprehensive, compassionate services that respect the dignity of those served. Services include: comprehensive health care for persons with advanced illness, bereavement services and support groups for grieving children and families. The Community Hospice provides its services from six centers located throughout the Capital Region. Call 1-800-678-0711 for more information. http://www.communityhospice.org/ DOUBLE H RANCH, A HOLE IN THE WOODS CAMP Situated on the shore of Lake Vanare in Lake Luzerne, NY, the Double H Hole in the Woods Ranch provides year-round fun and emotional support to children ages 6-16 facing critical illnesses. There is no charge for any of the Ranch's programs. Double H Ranch 97 Hidden Valley Road Lake Luzerne, NY 12846 (518) 696-5676 http://www.doublehranch.org/ GILDA'S CLUB CAPITAL REGION NEW YORK The mission of Gilda's Club Capital Region New York is to provide a welcoming place where men, women and children living with cancer and their families and friends can find social and emotional support. Warm, home-like and non-residential, Gilda's Club Capital Region New York offers support and networking groups, lectures, workshops, and social events free of charge to its members. Gilda's Club Capital Region New York One Penny Lane Latham, NY 12110 518-782-9833 http://www.gccrny.org/ THE LEUKEMIA & LYMPHOMA SOCIETY The Leukemia & Lymphoma Society helps individuals coping with blood cancers - leukemia, lymphoma or myeloma. Services include disease & treatment information, patient financial aid for transportation and medications, and educational support programs. The Leukemia & Lymphoma Society 6 Automation Lane Albany, NY 12205 (518) 438-3583 www.lls.org NATIONAL CANCER INSTITUTE The National Cancer Institute coordinates the National Cancer Program, which conducts and supports research, training, health information dissemination, and other programs with respect to the cause, diagnosis, prevention, and treatment of cancer, rehabilitation from cancer, and the continuing care of cancer patients and the families of cancer patients. THE NCI is the federal government's principal agency for cancer research and training. (800) 422-6237 www.cancer.gov |
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